Comments on: (Crohn’s) disease of the week http://www.communicatrix.com/2006/03/crohns-disease-of-the-week.html a virgo's guide to the universe Fri, 05 Dec 2008 09:18:06 +0000 http://wordpress.org/?v=2.6.5 By: communicatrix » Blog Archive » Big Yellow Taxi http://www.communicatrix.com/2006/03/crohns-disease-of-the-week.html#comment-4694 communicatrix » Blog Archive » Big Yellow Taxi Tue, 10 Oct 2006 22:14:58 +0000 http://www.communicatrix.com/2006/03/crohns-disease-of-the-week.html#comment-4694 [...] I’ll be honest: I prefer those periods characterized by boundless energy and the fruitful activity that accompanies it to the doldrums. But I learn more from the latter. [...] [...] I’ll be honest: I prefer those periods characterized by boundless energy and the fruitful activity that accompanies it to the doldrums. But I learn more from the latter. [...]

]]> By: communicatrix » Blog Archive » Not-fat girl* http://www.communicatrix.com/2006/03/crohns-disease-of-the-week.html#comment-804 communicatrix » Blog Archive » Not-fat girl* Tue, 11 Apr 2006 14:21:34 +0000 http://www.communicatrix.com/2006/03/crohns-disease-of-the-week.html#comment-804 [...] I “cheated” on the SCD last year—occasionally at first, ramping up to full-throttle food slut over the holidays. While I’m 99% sure that a course of antibiotics provided the actual tipping point, I know that my own lack of self-care contributed directly to my current sorry condition, just as surely as I know all of those years of Greek omelette-and-fries lunches (preceded by corn muffin and coffee breakfasts and followed by tortilla chip and salsa dinners) contributed to the onset of the disease itself. I feel good when I eat well; I feel bad when I don’t. Quod erat demonstrandum, no matter what my G.I. doctor says about food-disease causality. [...] [...] I “cheated” on the SCD last year—occasionally at first, ramping up to full-throttle food slut over the holidays. While I’m 99% sure that a course of antibiotics provided the actual tipping point, I know that my own lack of self-care contributed directly to my current sorry condition, just as surely as I know all of those years of Greek omelette-and-fries lunches (preceded by corn muffin and coffee breakfasts and followed by tortilla chip and salsa dinners) contributed to the onset of the disease itself. I feel good when I eat well; I feel bad when I don’t. Quod erat demonstrandum, no matter what my G.I. doctor says about food-disease causality. [...]

]]> By: communicatrix http://www.communicatrix.com/2006/03/crohns-disease-of-the-week.html#comment-719 communicatrix Wed, 29 Mar 2006 16:38:54 +0000 http://www.communicatrix.com/2006/03/crohns-disease-of-the-week.html#comment-719 Thanks, everyone. Lest anyone get too alarmed, there is no blood shooting out of my ass. No diarrhea this time, either, which is what has me and my GI doc at loose ends about what to do. This flare is distinctly different than the other two I've had. Rick, I'd love it if your friend could point me towards a friendly nation. And Bonnie, I've tried acupuncture, from a really great acupuncturist. I wish I could say it made all the difference, but it just didn't. Shiatsu is helpful, and I'm going in for a session on Monday. But maybe I'll hit you up for that name anyway. Pulling out of a flare so far has meant tons of rest, strict strict strict SCD and meds. We're just holding off on the big-gun meds b/c, as I said, the symptoms this time are dramatically different. (A "regular" Crohn's patient? Who knew?) Thanks, everyone. Lest anyone get too alarmed, there is no blood shooting out of my ass. No diarrhea this time, either, which is what has me and my GI doc at loose ends about what to do. This flare is distinctly different than the other two I’ve had.

Rick, I’d love it if your friend could point me towards a friendly nation.

And Bonnie, I’ve tried acupuncture, from a really great acupuncturist. I wish I could say it made all the difference, but it just didn’t. Shiatsu is helpful, and I’m going in for a session on Monday. But maybe I’ll hit you up for that name anyway.

Pulling out of a flare so far has meant tons of rest, strict strict strict SCD and meds. We’re just holding off on the big-gun meds b/c, as I said, the symptoms this time are dramatically different. (A “regular” Crohn’s patient? Who knew?)

]]> By: Bon http://www.communicatrix.com/2006/03/crohns-disease-of-the-week.html#comment-714 Bon Wed, 29 Mar 2006 11:42:00 +0000 http://www.communicatrix.com/2006/03/crohns-disease-of-the-week.html#comment-714 {{{{hugs}}}} and }}}}vibes{{{{ as always. And... (with caution about coming off in an irreverent tone) have you tried acupuncture? I did that for a hard while a few years ago here in Santa Monica (for $80/pop) and found relief I'd never before known for things I'd been told would never be relieved (migraines, mainly). Anyway... just a thought. I hate that you're having physical BS (again). And I truly hope you're just an instant away from connecting with that right and perfect person who will help you figure this out for good. If you happen to want an acupuncture referral, I've got you covered on that, FWIW. Love you. {{{{hugs}}}} and }}}}vibes{{{{ as always.

And… (with caution about coming off in an irreverent tone) have you tried acupuncture? I did that for a hard while a few years ago here in Santa Monica (for $80/pop) and found relief I’d never before known for things I’d been told would never be relieved (migraines, mainly).

Anyway… just a thought. I hate that you’re having physical BS (again). And I truly hope you’re just an instant away from connecting with that right and perfect person who will help you figure this out for good.

If you happen to want an acupuncture referral, I’ve got you covered on that, FWIW.

Love you.

]]> By: Michael Blowhard http://www.communicatrix.com/2006/03/crohns-disease-of-the-week.html#comment-713 Michael Blowhard Wed, 29 Mar 2006 07:11:03 +0000 http://www.communicatrix.com/2006/03/crohns-disease-of-the-week.html#comment-713 Lotsa love, and best wishes for a fast cure, or at least mucho drastic improvement. What a challenging time for you. Lotsa love, and best wishes for a fast cure, or at least mucho drastic improvement. What a challenging time for you.

]]> By: Rick http://www.communicatrix.com/2006/03/crohns-disease-of-the-week.html#comment-712 Rick Wed, 29 Mar 2006 06:22:08 +0000 http://www.communicatrix.com/2006/03/crohns-disease-of-the-week.html#comment-712 A friend of mine out here is a traditional internist, but has a HUGE interest in the holistic approach. I'll ask him if he knows of any groups out West. A friend of mine out here is a traditional internist, but has a HUGE interest in the holistic approach. I’ll ask him if he knows of any groups out West.

]]> By: communicatrix http://www.communicatrix.com/2006/03/crohns-disease-of-the-week.html#comment-711 communicatrix Wed, 29 Mar 2006 05:31:20 +0000 http://www.communicatrix.com/2006/03/crohns-disease-of-the-week.html#comment-711 Between my own compulsive searching and that of friends and relatives, I keep up pretty well with the latest studies. I'm really not interested in what they're coming up with at teaching hospitals, since it's just more of the same: medicate the problem, rather than get to the root of it. What I'd really like is to find one doctor who'd support me in my desire to ultimately manage this disease with diet—and not just any diet, but one that's helped thousands of people with IBD send their disease into permanent remission. There's a group of doctors working in the Chicago area who take a holistic view, but practice Western medicine. Find me one of those out here and I'm there, dude. Between my own compulsive searching and that of friends and relatives, I keep up pretty well with the latest studies.

I’m really not interested in what they’re coming up with at teaching hospitals, since it’s just more of the same: medicate the problem, rather than get to the root of it. What I’d really like is to find one doctor who’d support me in my desire to ultimately manage this disease with diet—and not just any diet, but one that’s helped thousands of people with IBD send their disease into permanent remission.

There’s a group of doctors working in the Chicago area who take a holistic view, but practice Western medicine. Find me one of those out here and I’m there, dude.

]]> By: Rick http://www.communicatrix.com/2006/03/crohns-disease-of-the-week.html#comment-710 Rick Wed, 29 Mar 2006 04:57:08 +0000 http://www.communicatrix.com/2006/03/crohns-disease-of-the-week.html#comment-710 Hey, man. Have you looked around the med schools for studies? Do you go to a teaching hospital for check-ups? They tend to be more open for discussion. -Rick Hey, man. Have you looked around the med schools for studies? Do you go to a teaching hospital for check-ups? They tend to be more open for discussion.

-Rick

]]>